Present and Future of the Inherited Retinal Dystrophies in Iberoamerica.

 

 

 

 

The first International Iberoamericana Retina Congress will take place on the 22nd and 23rd of October 2021; 11 AM to 4 PM Argentina /Uruguai / Sao Paolo (time) and 4 PM to 9 PM Spain (CEST) as a virtual event, where associations of Inherited Retinal Dystrophies (IRD) affected families will join virtually to deal with the present and future of these pathologies and linked to finding palliative and/or curative treatments.

 

Check here to find more information: https://www.google.com/url?q=https://retinaiberoamerica.org&sa=D&source=editors&ust=1632330055428000&usg=AFQjCNGRB-I_wsuMvRcz4lFJ7TeseZ9Oww  or in  retinaiberoamerica@gmail.com

 

Fill the following form and you will receive the link for the Congress to your email.

 

Click on the following link to read about the preliminary program: https://www.google.com/url?q=https://retinaiberoamerica.org/i-congreso-retina-iberoamerica&sa=D&source=editors&ust=1632330055428000&usg=AFQjCNEupZBemVkKioWW3oiH-duuBD5J4Q

 

The I Internationa Retina Iberoamérica Congress will take place this coming October 2021 on the occasion of Word Vision Day.

 

Date: Friday 22nd and Saturday 23rd  October 2021.

 

Schedule: Friday 22nd October 11 AM to 4 PM Argentina /Uruguai / Sao Paolo: 4 PM to 9 PM Spain; 9 AM to 2 PM Colombia

Preliminary Program

Friday 22nd October

The following times are set up for Argentina/ Sao Paulo.

• 11AM. Welcome. Kekdenny Medina, President of Wise, Experts and Geniuses Foundation from Dominican Republic.
• 11.05 AM. Retina Iberoamérica Introduction/Presentation. Andrés Mayor.

11:10 AM. Panamericano Group of Retina Dystrophies (PANIRD). Dr. Carlos Mendoza. In charge of  Bascon Palmer Clinical Trials, Miami.

 

11.30 AM Clinical Diagnosis and Management of Inherited Retinal Dystrophies and Optic Nerve.

Moderates:

Gustavo Serrano, the President of “Fundación Lucha contra la Retinitis Pigmentosa” from Chile (FUNDALURP)

Taking part:

• Dr. René Moya. Retinitis Pigmentosa. Chile.
• Dra. Laura Echandi. Macular Dystrophies. Argentina.
• Dra. Alejandra Antacle. Optic Neurophaties. Argentina.
• Dr. Natalio Izquierdo. Syndromic Cases. Puerto Rico.

12.30 PM. Genetic and Molecular Diagnosis. Types of genetic studies, genetic counseling, data protection, and bioethical concepts

 

Moderates:

Marcela Ciccioli. President Retinal Association Argentina

Taking Part:

• Dra. Roser González-Duarte. Genetics Emeritus Professor of the University of Barcelona (Spain).
• Dra. Rebeca Valero. DBGEN. Spain.
• Dra. Fabiana Arzuaga.

 

•  13:30 horas. Break Time.

2 PM. Associative good practices on Rehabilitation, Autonomy, Emotional Support of people with visual impairment.

Moderates:

Carla Scanniello. President of Retina Association Uruguay.

Taking part:   

• Marina Leite.  Retina Association Brasil.
• Gustavo Serrano. Fighting against Retinitis Pigmentosa Foundation from Chile.
• Almudena Amaya. Federation of Associations of Inherited Retinal Dystrophies (Spain).

3 PM. Associations role in Research and access to new treatments

Moderates:   

Henri Guio. President from Retinosis Pigmentaria  Colombian Association Asociation.

Taking part:         

• María Antonieta Leopoldi. The experience from Retina Brasil, in the access to treatments in the National Health Service.       
• Andrés Mayor. Asociación Acción Visión España. For a National Prevention Plan towards preventable blindness

 

 

• 4 PM. End of the day.

 

 

Saturday 23rd October

11 AM. Welcome. Kerkdenny Medina, President of Wise, Experts and Geniuses Fundation  from Dominican Republic.

11.05 AM. Gene therapy Journey: from laboratory to clinical practice.

Moderates:    

Gustavo Serrano Reyes. President of FUNDALURP.

Taking part: 

• Prof. Dr. Gustavo Aguirre. Pensilvania University (USA).

11.35 AM. Therapies

Moderates:  

Andrés Mayor. President of “Acción Visión España” Association.

 

Taking part: 

• Dr. Ramiro Maldonado. Blocking mutations. (Ecuador/USA).
• Dr. Nicolás Cuenca. Optogenetics and Pharmacogenetics. (Spain).
• Dra. Valeria Cantó Soler. Creating Retinas. (Argentina/USA).
• Dra. Gemma Marfany. CRISPR:  The Genetics “Cut-Paste”. (España).
• Dra. Fernanda Porto. Gene Therapy. Retina Brasil.

 

1 PM.  Retinal Dystrophies Clinical Trials in humans.

Moderates:

Miguel Ruiz. Group of patients from the gene CRB1.

Taking part: 

•  Dr. Byron Lam. (USA).

 

• 1.30 PM. Break.

 

2 PM. Rights and Inclusion from impairment visual Iberoamerica people.

Moderates:

Francisco Albarracín. President of the Argentina Retinosis Pigmentaria Foundation.

 

Taking part: 

• Henri Guio. (Colombia).
• Matías Ferreira. (Argentina).
• Gabriela Díaz. (Panamá).
• Maria Victoria Belotti. (Argentina).

 

3 PM. Brazil’s experience with Retinal Dystrophies.

Moderates:

Maria Julia Araujo. President of Retina Brasil

Taking part:   

• Dra. Juliana Saloom. From Ocular Genetic Research to gene therapy for RPE65 gene mutations.
• Dra. Roxanne Resende. Inherited retinal diseases: collaborative work among clinicians and patients associations.

 

3.40 PM. Congress Closing Ceremony

Taking part:

Representatives of Associations from Retina Iberoamérica.

• Asociación Retina Argentina.
• Fundación Argentina de Retinosis Pigmentaria.
• Fundación Lucha contra la Retinitis Pigmentosa de Chile.
• Asociación Retina Uruguay.
• Asociación Colombiana de Retinosis Pigmentaria.
• Asociación Retina Brasil.
• Fundación Retinosis Pigmentaria de Puerto Rico.
• Fundación Sabios, Expertos y Genios de República Dominicana.
• Federación de Asociaciones  de Distrofias Hereditarias de Retina (FARPE).
• Asociación Es Retina Asturias (España).
• Asociación Acción Visión España.
• Otros Grupos de pacientes de: Guatemala, Honduras, Panamá y Bolivia.

 

Information and Registration

Registration in the following form  https://linktr.ee/iberoamerica